Tia Rey, a 23-year-old customer care adviser, was diagnosed with antisynthetase syndrome, a rare autoimmune disorder, in 2024 after noticing a rash, swollen fingers, and joint stiffness.
Previously healthy, she now struggles with mobility, experiencing painful muscle inflammation, knee locking, and breathlessness from interstitial lung disease.
Unable to lift her arms at times, Rey manages symptoms with steroids and is considering rituximab infusions, which cost £10,000 privately.
She launched a fundraiser to cover potential costs, promising refunds if NHS funding is secured.
Despite uncertainties about her career and future plans, Rey remains positive, appreciating life more deeply.
The condition, caused by an overactive immune system, also causes fatigue and heart issues, underscoring the challenges of managing rare diseases.
2025-09-10 19:33:00
Tia Rey raises awareness for antisynthetase syndrome through fundraising.
2025-09-12 10:12:00
Tia Rey battles antisynthetase syndrome with optimism and fundraising.
2025-09-10 12:44:00
Tia Rey navigates life with antisynthetase syndrome, a rare autoimmune disorder.
2025-09-10 12:18:00
Tia Rey fights antisynthetase syndrome with fundraising and hope.
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