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Diagnosed with antisynthetase syndrome in 2024, 23-year-old Tia Rey faces muscle inflammation, lung issues, and mobility challenges that disrupted her life as a customer care adviser.
Symptoms like rashes and swollen fingers led to her diagnosis, managed with steroids and potential rituximab infusions costing £10,000 privately.
Rey’s fundraiser supports treatment costs, with refunds promised if NHS funding is secured.
Despite fatigue and heart complications, she remains positive, valuing life’s moments.
Her journey highlights the struggles of living with a rare autoimmune disorder, balancing medical needs with personal goals, and advocating for awareness and support.
2025-09-10 12:44:00



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